Monday, October 05, 2009

LA Cancer Challenge Oct. 25th!

Wow, well, what can I say? All of the amazing people who left comments and wrote such wonderful words truly touched me. Thank you, from the bottom of my heart, for each and every one of you. I really felt cared for, and those feelings are good medicine. Good for the soul, good for the fight. Again, I am sorry that I go a bit of time before updates. Tiana mentioned that people on facebook ask her about me, but I just figured that she was just trying to make me feel good. I know I should be better about updating, and the response after the last blog was immensely motivating. I think my aunt Betty took the prize for the fastest posting of a comment, a mere 30 minutes or so after I posted (on a Saturday night, no less. Betty, you and I have got to get out more). Again, thank you so much for your kind words. I am still doing very well and I think that every one of you have played a part in that. I may not see many of you very much, if at all these days, but there has got to be some sort of mental/spiritual thing going on (which is a pretty hard thing for an engineer to say).

Anyways, a quick health update. As I said before, I am still doing very well. I am a little light and my legs barely have the strength to get me around, but I still manage to get around, sort of. Dialysis still sucks but is tolerable and if you really press me I will admit that I am really thankful for it (though there are days when I don’t really think I need it but I suspect that I am being kept on because that is how the system works (this is on my more paranoid days and in actuality, I probably would not last long off the machine)). Wow, I was sort of all over the place there. My appetite is doing well (when it gets helped) though I could certainly be eating more. And of course there are a few other little issues, aches, and pains.


Now, onto the more important stuff. First of all, the LA Cancer Challenge 5K/10K is coming up in just a few weeks, Sunday morning, October 25th. The 10K starts at 7:30am (yikes!) and the 5K starts at 9am (a bit more reasonable). I will probably be there to cheer on the 10K runners and walkers, but I will be attempting the 5K myself. Lets see, if the race starts at 9am, I will probably be finishing around, hmmm, 10:30, 11, hopefully before noon. Last year, it took me 1 hour and 14 minutes. If I am still out on the course, someone save me some pancakes. Please go to my team page to join our team.

Link to the Team page. Please scroll down and click on "Team Tyler".

We have had the best overall 5K team time two years running, and it would mean a lot to me if me kept that streak going. Who knows what will happen this year, but it is looking like Shannon Rowbury (who ran the 1500m for the US at the 2008 Beijing Olympics) will again be leading our team. Just think, you can tell your neighbors, friends, and grandchildren that you ran alongside an olympian. She is really pleasant, too. She may even talk to you (that, by the way, is the only requirement for my father to like you). We all had a lot of fun last year and it is a really good opportunity to catch up with people I do not see all that often. So I hope to see you there. I apologize for the race’s website. If you can successfully navigate through it, I applaud you. Don’t worry about setting up your own website and doing you own fundraising. Just go through the motions, it has been a rough year, financially, for all of us.

As far as keeping busy, most of my time is spent dialyzing, getting chemo, or recovering from chemo, but I have managed to get out of town a few times over the last few weeks. I just got back from a trip to Portland to visit some family and see my great aunt on her 95th birthday. She looks great and is just as feisty as I remember her. I think I may have more in common with her, these days, than anyone else in the family. We walk at about the same speed, don’t really handle stairs all that well, take a while to get up out of chairs, are fairly particular about our foods, and occasionally speak our minds a bit more than maybe we should. Well, I guess Zel can say whatever she wants, whenever she wants, but I suppose I should maybe hold my tongue from time to time. I spent the majority of my time with Zel, but was also really happy to see my other family members in the area like Tom and Birken, Betty and David, and Jerry, who drove down from Washington. Everyone looked to be doing very well and I was really pleased having that much family together. I know that Grandma would be happy that her boys saw each other and that just put a smile on my face. Zel had quite a birthday filled with eating, eating. and more, you guessed it, eating. There was a bit of visiting during and between meals, but the main focus of the day was food. This was turning out to be a pretty good trip for me, once I medicated. Special props go to Birken and Jerry who came from pretty good distances by different combinations of boat, bus, or truck. Birken is just starting his sophomore year at Evergreen and is looking like quite the professional college student. This suits you much better than disheveled high school student. Well done, sir. Another highlight of the trip was Zel’s friends. They are hilarious and we really enjoyed our breakfasts with them. Can you believe that one of her friends lived in a house near Santa Fe, New Mexico, built in 1980, that was entirely climate controlled using passive solar energy. It was built into a hillside so that three walls were insulated by earth and then the south wall was all windows. On summer days, they would close the blinds. The rest of the year, the sun warmed the house nicely. I asked if she was comfortable, and she said she wore shorts and sandals every day of the year. It can be done people. It is about time we start implementing these considerations a bit more often when building. The flights went smoothly, the old folks home was very hospitable, the family and friends were warm and welcoming, all in all, it was a great few days. Even the weather was pretty nice, though I heard it was gorgeous the week before we got there (I think we heard that the last time we were in Portland, too).

The other two trips were a weekend in the bay area and a weekend in Tahoe. The first was mainly to see Tom as he has now moved to England and it was good catching up with him, his brother, father, and friends and also to see Chris and Katie and Vincinzo (their 2 month old). I got to spend even more time with the Coffees the next weekend which I spent with them in their family’s cabin in Tahoe. Both weekends were amazing and it was really good for me to spend some quality time with good friends. Hanging out with the Coffees was pretty amazing. In about 15 months, Chris went from being single (not really) with no attachments to him and Katie owning a house, getting married, having an adorable baby boy, and getting a dog. Wow, that is some fast domestication. Impressive. I have never spent that much time with a child that young though I think I made progress over the weekend. At first, I was pretty nervous even just holding Cinzo, but by day 3, I had held confidently, fed, burped, and changed him(with a tiny bit of poop) and even had gotten him to smile (no small feat for this kid). It felt pretty good and I was so thankful for Chris and Katie to be so comfortable with their child and me. Maybe I am some relation to my grandmother.

Anyways, the rest of the family is doing well. Eva is diving into her MBA, meeting great people and learning fascinating things. My parents are doing well. Dad is still playing soccer. Mom is running a bit more. Both are doing a great job at taking care of me. Eva’s parents just got back from a cruise through Scotland that sounded amazing. I love castles, and abbeys, and Scots. Well, I hope to write before then but if I don’t, I hope to see you at the LA Cancer Challenge. Remember to bring your “A” game.

Take Care and Live Strong,
Tyler

10 comments:

GregSJ said...

Tyler, it is great to hear that you are doing well and maddening to find out that you were in the bay area and I missed you.

From what I understand the more comments we make the more likely you are to post again soon, so:
1) How do you know Shannon Rowburry? I knew her in high school. She went to Sacred Heart and her mom and my mom are friends through work.
2) Should I try and change my LA Cancer Challenge registration from 10k to 5k? As I said before I am not that fast anymore, but can probably help keep the streak going.

Keep the posts coming,
Greg Jizmagian

Anonymous said...

Tyler, Can't wait for the race...I took great pride in pacing your Dad last year in the 10K...but maybe the pacee is faster than the pacer. So I will pound that 5K, when a 54 year old is in between injuries watch out. ha! See you on the 25th. Always special to read your posts. P.S. Stop sandbagging on your times. ha...Mark Carpenter

Unknown said...

Tyler, The Poly XC Family will be out in force once again at the LA Cancer Challenge! Looking forward to seeing you, Eva, and your parents. Much love,

- Nate and Becky Bershtel

Anonymous said...

Tyler,I so enjoyed your visit to Gresham to help me celebrate my 95th birthday!

But Tyler: it's not "an old folks home;" it's a "campus!" Still, I'm glad you found it hospitable. All the residents enjoyed visiting with you again.

Bob left today for Sedona. Hope he and his dog have a good trip! It'll be tame at breakfast with no water fights! Rae says "hi" and she's glad you enjoyed hearing about her solar house.

Thanks again for facing the airlines to come to Portland! Do it again soon! Good luck in the race next weekend. I'll sit in my chair and run for you!

Love, Great-Aunt Zelda

Anonymous said...

Hi Tyler:

Birken and I were so glad to see you. Thanks so much for flying up. Being able to meet up with you guys at "Salty's" for lunch on the Columbia and then later at Zel's and on to McMinimin's Edgefield for dinner was a great day together. Hope we can do it again soon. Good luck in the race.Love you so very much.

All our hugs, kisses, and love to you kiddo,
Uncle Tom and Birken

Vicky Durham said...

Your family sounds so fun! That's great that you got to see so many family members on your recent trips. (Bryan and Katie are currently going to school in Portland.) It already looks like its going to be another great race day next week! We won't be able to be there in person, but we will be there in spirit! Thanks for the update! Tell everyone hi!! Take care! : )

Kevin Word said...

Tyler,

The Word family is in the house..holla..lol.. Just wanted to stop by and say hi :) So how about them Bears?? A little disappointing this season so far huh?

Well anywayz...Thanks for the blog updates and I appreciate your willingness to share to the world your difficult situation and your ability to enlighten us with your humor.

The Word family is showing you mad love and support!

We ALL love you Tyler :)

Kevin Word and family

Anonymous said...

Tyler-
You are an inspiration and as a fellow PC survivor, I wanted to share my story as a source of hope as these were motivational to me. Keep beating those stats and join me in the miracle network! Thanks for your work w/PanCAN too!

http://nccancerstories.org/stories/matteson.asp

Lori

ashli said...

Hey, Tyler. I just got your PANCAN email and decided to look you up. Thanks for being an activist and trying to help others in the midst of this devastating disease. I'm 38, have a 5-year-old who thinks I hung the moon and a ten-year-old with autism. We are Christian homeschoolers. I found out I had pancreatic cancer this summer. NOT how I planned to spend my summer vacation. Like you, I had no risk factors. Hang in there. You're not alone.

Anonymous said...

14th Annual LA Cancer Challenge 5K/10K Run/Walk & Kids Can Cure Fun Run October 30, 2011

Date:
October 30, 2011 6:00am – 1:00pm

Description:
October 30, 2011 marks the 14th Annual LA Cancer Challenge 5K/10K Run/Walk (LACC) and Kids Can Cure Fun Run held on the Veterans Administration (VA) Grounds in West Los Angeles. This fabulous Halloween-themed family event includes a 5K, 10K & Kids Can Cure Fun Run. The LACC hosts our Health and Fitness Expo with more than 60 outdoor exhibitor booths, activity tents and a stage with a huge video screen. The Expo also captures the Halloween spirit with a Pumpkin Pancake Breakfast, Kids Zone, costume contests for all age and a fun-filled day for all. At the heart of the LACC is our goal to unite generations, young and old, through physical fitness to create public awareness and raise much-needed funds for pancreatic cancer research.

Cost:
$15 Kids Can Cure Fun Run
$35.00 5K or 10K Registration
$75.00 5K or 10K Registration with Pre-Paid Priority Parking

Location:
Veterans Administration Grounds
11301 Wilshire Boulevard
Los Angeles, CA 90073

Additional Information:
www.lacancerchallenge.com
www.facebook.com/LACancerChallenge
For more information, please contact Phillip Kim at phillip@pancreatic.org or call (310) 473-5121